Societal Perspective of Cost Analysis of an Early Intervention Programme for Autism Children and It’s Contributing Factors in Klang Valley Malaysia, 2019

Main Article Content

Mohammad Najib
Muhamad Hanafiah Juni

Abstract

Autism spectrum disorder (ASD) is a public health concern globally, characterized by impairments in cognitive process, social functioning, communication skills, behaviours and interests. These problems require a multidisciplinary approach through an early intervention programme (EIP) which is remarkably expensive. To date, the knowledge of EIP costs for ASD children in Malaysia remains unknown. This study estimated the annual average costs of EIP for ASD children from the societal perspective (total average costs, education costs, treatment costs, and living costs), the relationship between the total annual average costs of EIP and its predictors. A cross-sectional cost analysis study using simple random sampling according to proportion was conducted among 280 parents of ASD children receiving EIP services in Klang Valley. The data were collected using interview-based questionnaire and proforma. The Activity-based Costing Technique was used to estimate the EIP-related costs. The non-parametric test was used for bivariate analysis and multiple linear regression for the predictors. The result showed that the total annual average costs of EIP, average education costs, average treatment costs, and average living costs per ASD child were estimated at RM15,158; RM3,896; RM1,948; and RM4,409 respectively. There was a significant association (P = .05) between total annual average costs of EIP, and its contributing factors; family income, ASD level, programme characteristics, and family support. Multiple regression analysis showed that 27% of the total annual average costs of EIP can be predicted by the combination of these factors; EIP types, EIP frequency, centre-based type, ASD level and family income. In conclusion, the study determined the total annual average costs of EIP and its predictors. This information is beneficial as evidence to assist the decision on future resource allocation by the policy maker.

Keywords:
Cost-analysis, total annual average costs, education costs, treatment costs, autism spectrum disorder, early intervention programme.

Article Details

How to Cite
Najib, M., & Juni, M. (2019). Societal Perspective of Cost Analysis of an Early Intervention Programme for Autism Children and It’s Contributing Factors in Klang Valley Malaysia, 2019. South Asian Journal of Social Studies and Economics, 4(3), 1-20. https://doi.org/10.9734/sajsse/2019/v4i330129
Section
Original Research Article

References

Lavelle TA. Examining health and economic outcomes associated with pediatric medical conditions in the United States. Harvard University; 2012.

World Health Organization. Children and Neurodevelopmental Behavioral Intellectual Disorders (NDBID) in Children’s Health and the Environment WHO Training Package for the Health Sector. 2011:1–51.

Adab N, et al. Children and neuro-developmental behavioral intellectual disorders. Int. J. Epidemiol. 2014;12(3):1-51.

American Psychiatric Association. Autism spectrum disorder. Curr. Biol. 2013;15(19): R786–R790.

Ting T, Neik X, Lee LW. Prevelance, diagnosis, treatment and research on autism spectrum disorders (ASD) in singapore and Malaysia. Int. J. Spec. Educ. 2014;29(3):82–92.

M. Ministry of Health, Clinical Practice Guideline Management of Autism Spectrum Disorder in Children and Adolescent; 2014.

Cidav Z, Munson J, Estes A, Dawson G, Rogers S, Mandell D. Cost offset associated with early start denver model for children with autism. J. Am. Acad. Child Adolesc. Psychiatry. 2017;56(9):777–783.

Autism Speaks. What Is Autism? 2018.
Available:https://www.autismspeaks.org/what-autism
[Accessed: 14-Oct-2018]

Escobar CM, Barnett WS, Goetze UD. Cost analysis in early intervention. J. Early Interv. 1994;18(1):1.

Kamaralzaman S, Toran H, Mohamed S, Abdullah NB. The economic burden of families with autism spectrum disorders (ASD) children in Malaysia. J. ICSAR. 2018;2(1):71–77.

Autism Speaks. Autism facts and figures; 2018.
Available:https://www.autismspeaks.org/autism-facts-and-figures
[Accessed: 17-Oct-2018]

Mendoza. The Economics of Autism in Egypt. Am. J. Econ. Bus. Adm. 2010;2(1): 12–19.

Buescher AVS, Cidav Z, Knapp M, Mandell DS. Costs of autism spectrum disorders in the United Kingdom and the United States. JAMA Pediatr. 2014;168(8):721–728.

Ganz ML. The lifetime distribution of the incremental societal costs of Autism. Arch. Pediatr. Adolesc. Med. 2007;161(4):343.

Lavelle TA, Weinstein MC, Newhouse JP, Munir K, Kuhlthau KA, Prosser LA. Economic burden of childhood autism spectrum disorders. Pediatrics. 2014; 133(3):e520–e529.

WHO. Key Facts. World Health Organization Web Page; 2018.
Available:https://www.who.int/news-room/fact-sheets/detail/autism-spectrum-disorders
[Accessed: 24-Sep-2018]

CDC. Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, MMWR. Surveill. Summ. 2014; 67(6):1–23.

Azizan H. The burden of autism. The star online-for write up; 2008.
Available:http://www.thestar.com.my/story/?file=/2008/4/27/focus/21080181&sec=focus
[Accessed: 28-Sep-2018]

Charman T, Pickles A, Simonoff E, Chandler S, Loucas T, Baird G. IQ in children with autism spectrum disorders: Data from the special needs and autism project (SNAP). Psychol. Med. 2011;41(3): 619-627.

Drummond MF, Sculpher MJ, Claxton K, Stoddart GL, Torrance GW. Methods for the economic evaluation of health care programmes (4th Edition); 2015.

Roddy A, O’Neill C. The economic costs and its predictors for childhood autism spectrum disorders in Ireland: How is the burden distributed? Autism; 2018.

Horlin C, Falkmer M, Parsons R, Albrecht MA, Falkmer T. The cost of autism spectrum disorders. PLoS One. 2014;9(9).

Sharpe DL, Baker DL. Financial issues associated with having a child with autism. J. Fam. Econ. 2007;28(2):247–264.

Motiwala SS, Gupta S, Lilly MB, Ungar WJ, Coyte PC. The cost-effectiveness of expanding intensive behavioural inter-vention to all autistic children in Ontario,” Healthc. Policy. 2006;1(2):135–51.

Knapp M, Romeo R, Beecham J. Economic cost of autism in the UK. Autism, 2009;13(3):317–336.

Knapp M, Romeo R, Beecham J. The economic consequences of autism in the UK. Found. People with Learn. Disabil. 2007;1-29.

Leslie DL. Understanding the costs of autism services. J. Am. Acad. Child Adolesc. Psychiatry. 2013;56(9):727–728.